Saturday, June 29, 2013

June 2013- Ascites

So I left the hospital after 6 days (May 18th), still in excruciating pain, but with no definitive cause and not enough pain relief.  The first 2 weeks were rough as I struggled to find an answer, while my symptoms changed.  Unable/unwilling to see another doc or take another test (yet) I continued to monitor my symptoms and research, research, research.  Meanwhile, I developed Bronchitis (threat of pneumonia)
I watched my symptoms slowly return to when I first was diagnosed... everything I ate or drank started trying to come back up.  I was gaining weight and eating less.  Eventually, I had an almost perfect basketball where my FLAT tummy used to be.  Looked and felt 6 months pregnant.  Very painful, don't recommend it.  Ascites!

Saw my oncologist June 24th, he diagnosed the fluid upon physical examination.  So 2 days later I had 2 liters drained from the abdomen.  I have a CT scheduled for Monday and a follow up the following week.  I need results:
-the cytology from my fluid
-the CT results
-review with oncologist

Once I can review (digest) things I will need a new plan.  I have had a plan at every stage, but this stage is the one I have dreaded the most.  To me 'it' represents "the end".

I was told of relief upon draining, but I haven't really seen it.  Lots of pain, uncomfortable and still looking quite large (4 months pregnant).  I have been vomiting a lot and keep losing my medication (not good). 
Chemo was mentioned as a possible 'treatment' funny how they use that word.  To help shrink it more, to alleviate some of the symptoms.  They took my port last August, because there are no further treatments for me... palliative ONLY.  I don't feel that chemo is a PALLATIVE option for me.  It was a race before to see which would kill me first, the cancer or the chemo.  Not really looking for odds these days.  The cost is too great for the 'benefits' they offer.

I'll be back within a couple weeks to post where we go from here.

Thank you for following, I hope for better news (or attitude)  next time !

6 comments:

  1. I am so very sorry. This is so unfair. I hope you are not in pain or that it is at least tolerable.

    ReplyDelete
  2. May you find peace and strength to come up with your plan. I am in the same spot with my mom. I too had a plan up until this point and now I have to figure one out. Please keep blogging your journey..I appreciate what you are doing during this awful time.

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  3. You really inspire me,

    I may suggest you to do budwig diet along with homeopathy, i know western world dont care about these stuff, but you are looking a fighter and i want you to strike cancer with full force...

    Would you like tell me few thing?
    1. what are your symptoms?
    2. How long you face symptoms before you finally diagnosed with cancer.
    3. How you calculate yourself at fitness level before diagnosed?
    4. What are you eating habits? more meat or vegetable?
    5. Family background
    6. Any recently emotionally trauma? like member death or breakup?


    Looking for reply.

    Regards from India
    God bless you with strength and health.

    ReplyDelete
  4. My husband at age 32 was diagnosed with stage 3b gastric cancer in august 2012. His stomach was removed in November. I was looking online just now for any help because he has the hardest time with nausea and is gagging his food up again. It just takes one bite too much and it hurts and comes up. It's hard finding others who lost there entire stomach :( Any advice on how you eat? We've been at this for awhile but it's so hard to watch him suffer

    ReplyDelete
  5. thanks

    gastric cancer


    http://magazines-for-women-2020.blogspot.com.eg/2017/08/what-you-should-know-about-stomach.html

    ReplyDelete
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